tv Victoria Derbyshire BBC News August 21, 2019 10:00am-11:01am BST
hello, it's wednesday, it's10:ooam, i'm joanna gosling. a uk resident who has been detained in iran has lost her appeal against a ten year prison sentence there for "acting against the iranian government", a charge she denies. aras amiri was detained in iran last year when she was there visiting her grandmother. we'll be talking to her fiance, james tyson, in his first interview about the case. yousef makki was killed with a single stab wound in greater manchester in march. two boys were convicted of carrying knives, one was cleared of manslaughter and murder charges.
yousef makki's mother wants them to get tougher sentences for those convictions. i've been speaking to her. if it was the other way round, if yousef had killed one of these boys, i am sure he would not have got bail, he would not have got two top lawyers on his case, and he surely wouldn't... he just... he would probably be locked up now for a very long time, to be honest. a breakthrough treatment for severe haemophilia is set to help thousands of patients. including two—year—old christopher, here, and his uncle harry. we'll find out more. and — did jade goody redefine reality tv? as a documentary series about her life comes to an end, we'll talk to her widowerjack tweed about her cervical cancer diagnosis, and about the impact of that shocking race row on big brother. anybody for bleach? what is that? bleach. she's bleaching her facial hair! she shaves herface.
hello. welcome to the programme. we're live until ”am this morning. do get in touch on all the stories we're talking about — use #victorialive. if you're emailing and are happy for us to contact you — and maybe want to take part in the programme — please include your phone number in your message. if you text, you'll be charged at the standard network rate. first rachel schofield has the news. borisjohnson will meet boris johnson will meet the german chancellor angela merkel in berlin later today as he tries to persuade the eu to persuade them accept fundamental changes to the brexit withdrawal agreement. allies of mrs merkel have accused mrjohnson of making a completely impossible request, and not being serious. the major sticking point remains the backstop — an insurance polcy that would keep the uk in the eu customs union to prevent the return of border checks on the island of ireland. a report has warned there are more than 200,000 children in england without a permanent home
— with some living in converted office blocks or even former shipping containers. the children's commissioner, anne longfield, says whole families are being housed in flats little bigger than parking spaces. the government says it's invested £1.2 billion to tackle all types of homelessness. the chinese foreign ministry says it has detained a worker at britain's hong kong consulate for allegedly violating the law. simon cheng man—kit has not been seen for 13 days after he failed to return to work after a business trip to shenzhen on the chinese mainland earlier this month. the uk foreign office had earlier said it was extremely concerned about his case and has reached out to authorities in the country. a fundraising page set up for the family of pc andrew harper has raised nearly £250,000.
pc harper was killed whilst attending reports of a burglary in berkshire on thursday. a man accused of his murder, 20—year—old jed foster, will appear at reading crown court later. he denies any involvement in the officer's death. the most senior catholic to be convicted of child sex abuse — cardinal george pell — has lost an appeal against his conviction. two of the three judges at victoria's court of appeal in australia rejected his claim that the verdict was unreasonable. the 78—year—old former archbishop of melbourne was jailed in march for abusing two 13—year—old boys. president trump has cancelled an official state visit to denmark after the nation's prime minister said greenland was not for sale. announcing the cancellation, mr trump tweeted: "denmark is a very special country with incredible people, but based on prime minister mette frederiksen‘s comments, that she would have no interest in discussing the purchase of greenland, i will be postponing our meeting scheduled in two weeks for another time."
denmark's prime minister said the suggestion that greenland would be up for sale was absurd, and said she hoped the president was not being serious. the nhs is to fund a new treatment for 2,000 people in england with severe haemophilia. the new drug is said to dramatically cut their risk of "life—threatening" bleeds and reduce treatment times. the drug is also much easier to take than current treatments. it's given as an injection just under the skin, rather than into a vein. and we'll be hearing from two members of the same family living who are living with severe haemophilia later in the programme. that's all from me, back to you, joanna. aras amiri is a uk resident. earlier this week she lost her final appeal against a ten—year jail sentence for "acting against iranian national security" — a charge she denies. ms amiri, who is 32, had been visiting her elderly grandmother in iran in march 2018 when she was detained. she was charged two months later with "acting
against national security". aras amiri is being held in the same prison in iran's capital tehran‘s as nazanin zaghari—ratcliffe, the dual british—iranian national sentenced to five years in prison for spying in 2016. we can talk now to aras amiri's fiance james tyson in his first broadcast interview. welcome. thank you forjoining us. thank you. you've been living with this now for more than a year and you have chosen until now not to speak publicly about it. why have you decided to speak now?|j speak publicly about it. why have you decided to speak now? i think eve ryo ne you decided to speak now? i think everyone would like these things just to be resolved through kind of official kind of channels and in a way there is no reason why they shouldn't be really. 0ne works in the best interest to do that and tries to support that process as much as possible. but i think up until now there has been a real focus from her family trying to work
in iran and through aras herself to put forward the right case with a fair trial and so on. but as some people might have advised early in the process anyway, these things have turned out otherwise to how they might do. what we always repeatedly come back with is it is a problem between the uk and iran. finally, there is a point where we need to try to find a way to solve this and that is something the uk has to look at as much as a round. so she was arrested when she was visiting iran to see her sick grandmother? that's right, yes. what happened? it was one of those situations were at short notice her grandmother was taken ill and she made quite a sudden visit to iran, as she often did, once or twice a year she would go there to visit without any problem whatsoever. 0n the day she was leaving, she was only there for a week, she was stopped on the way to the airport and was led into a series of
interrogations and imprisoned in solitary confinement and been a period of interrogations over two months. what was she told about why she was being arrested? you say she had been travelling there fairly frequently beforehand without any problems. that's right. she always travelled for visiting her family and there was no issue about that. this time she was simply told she was there because she worked for the british council and they were not happy with this. i think they wanted to put pressure on the british council and the uk to try and see what the uk would do to get her out. the british council is basically the uk's international organisation for cultural relations and that's what she was doing, that work? exactly. she was employed in the uk as an officer and her role was bringing to the uk iranian art to present to uk audiences, the best of contemporary literature, music, visual arts and theatre to the uk public to try and
develop better understanding of iranians contemporary culture and history. obviously things escalated. she ended up going through the court process. you said that she had obviously wanted to present the correct case, go through the correct procedures. how much support was she and you getting through those stages? there is not really much support that can be given. i think there was a process where she can appoint herself a lawyer, in some respects these cases vary, some people aren't even given that. even the lawyer we got initially has to be approved through the judiciary. 0ne lawyer was rejected and we have to try and find a lawyer that is approved by the system. that might bea approved by the system. that might be a lawyer that is complicit with that system, or is accepted to follow what that system decides so it isa follow what that system decides so it is a very limited process and there is very limited connection and time she can have with her lawyer. at the same time, she had a lawyer that was present in her first trial
but then that led to the first sentence which came in may which was for ten years. then we went through a process of appeal which she submitted and in the process of that appeal there was no contact with her lawyer or with aras herself and that appeal was rejected, the news that came out this last weekend. what about the british government? have you had much contact? initially because aras is any iranians citizen they were in a confused situation where they felt they didn't have a responsibility or authority to necessarily intervene in such cases. although it is in some ways the difficulty because of course she was working for a british government sponsored non—departmental government body which is the british council. so in many ways the british government at some level is responsible for her well—being and duty of care, and her work, actually, particularly because that's the reason why she was being held. initially they would not meet with us, actually. when i tried to meet with the foreign office, we
we re meet with the foreign office, we were told it was best for her family to deal with the situation. if you think a to deal with the situation. if you thinka uk to deal with the situation. if you think a uk diplomat is arrested in another country and you were told your mother should sort out the problem, it is not really necessarily very helpful. i think that changed over time and the british council and everyone was a lwa ys british council and everyone was always very concerned and of course eve ryo ne always very concerned and of course everyone wants her to come out and to be released and for them not to bea to be released and for them not to be a problem and one hopes these things will just be a problem and one hopes these things willjust get resolved. i think the iranians strategy with the judiciary has been one of maximum pressure and to give the kind of maximum impact that they could, and that also led to when the sentence was announced whereby they announced the sentence before aras even heard of it herself and it was onto the world international media. and so it was one of these cases where you know that what is happening is being done for public effect. as much as one can try to work within the official channels, one knows that we are dealing with a situation which is about the appearance and how things look, and the impression that iran wants to make to the uk and the
pressure they want to put on the uk, and using aras in this way as one might say, whether it is a bargaining chip for a hostage of some kind, to try and get what they wa nt some kind, to try and get what they want is some advantage in their relationship with the uk. she is being held in the same place as nazon in zaghari—ratcliffe, another high—profile dual nationality british iranians citizen who is being held. have they had much contact, the two women? yes, they are basically sharing the same space, so are basically sharing the same space, so you could say they are housemates in some way. like with the other women in the ward, they are very supportive of each other and they are going through what is a very intense experience, and in many ways they have to keep a very positive outlook and support each other through that, and telling stories and sharing books they have and so on, and cooking together. that is how they try and pass their days. in many ways it is a very close experience for them and in many ways it is good that they can have each other through this time.
that must be reassuring for you, a comfort for you. you did mention that she was held in solitary confinement at one point. that's right. what has she been through up until this point and how she coped with it? i think she has been coping very well. i think she keeps in very good spirits and i think one has to be quite stoic, let's say, about these situations, and to kind of keep a clear mind and focus, and in a way, to sort of, one has to be kind of patient in many ways and one has to find a way of being resistant to what's happening to you and at the same time to find a way of fighting that without being antagonistic, in a way that might exhaust you because you are within a system that is designed to do precisely that. nazon in zaghari—ratcliffe went on hunger strike for some time. they must have been together at that point. that's
right, yes. how did aras feel about that? have you had much contact with her? have you been able to speak to her? have you been able to speak to her? we only have quite limited time to speak. we can't go into too much detail about what is happening in the ward and so on but of course, eve ryo ne the ward and so on but of course, everyone is very concerned for each other, actually. when one person feels they are compelled to do a hunger strike everyone tries to support that person as much as they can through that process. you are engaged. that's right. at one point she came out on bail last summer and you told me earlier at that point you told me earlier at that point you hoped you might go out to iran and actually get married. what happened? just simply that was the point where i think it had been discussed that in the ongoing investigations and interrogations that aras was going through, that was when they were asking her to
work with the iranian government in some way as an informant in the uk and on that basis they would support her release and so on. when she resisted that and said she did not wa nt to resisted that and said she did not want to engage in any of that activity, at that time i had a visa that was approved to go last summer but then we got a call saying if i went i would probably be put into danger and might be arrested or deported. so, ithink danger and might be arrested or deported. so, i think we decided maybe it was better to put a hold on those plans for the time being. what do you want the british government to do now? i think they have to talk to do now? i think they have to talk to the iranian government. it feels very simple what should happen. 0f course, we hear about these news stories about tankers and so on and eve ryo ne stories about tankers and so on and everyone is very quick to act. there's all kinds of things that are going on. and actually, this feels like a very simple situation. it is one that is based on mr routh and
misunderstanding. of course, these of military situations that we hear about, we don't want to hear about those kind of stories. what aras was doing was a very simple thing. she was working in london to bring to the uk iranian art and to help build a better understanding of iranian culture. 0ne a better understanding of iranian culture. one would think that is quite a positive thing and everything she did was actually through and with the approval of the iranian government, the ministry of culture and islamic guidance who would approve and assess every project she did. it's not like she was working in any way secretly and the iranian government and judiciary all know this so they know that what is happening is false. though needs to bea is happening is false. though needs to be a clear understanding to say, look, we don't need this kind of activity to iranians citizens or uk citizens. there needs to be a way to resolve that and i think that involves listening on both sides and being quite adult about these
things. in a way, it is embarrassing both for the iranian government and for the british government to hurt an employee of the british cultural organisation working completely and legitimately as other nations from france, germany and austria, they all have cultural relations organisations and they are able to carry on with their activities. i think there needs to be a way of solving this quite quickly. you must feel like you are in limbo at the moment, do you? she has this ten year sentence. that's right, limbo is quite a good description of it. richard ratcliffe is nazon in —— nazon is a nazon in zaghari—ratcliffe's partner. in many ways he has knowledge of the situations. the things that get set and the processes . things that get set and the processes. having someone who you
can share that with has a ways been a great support. we have great sympathy with each other about what is happening. —— nazon in zaghari—ratcliffe. is happening. —— nazon in zaghari-ratcliffe. what would you say to the foreign secretary right now? i would say get on the phone and talk to the iranian government and talk to the iranian government and say this cannot happen. we have to find a way of solving this. we appreciate your time, james tyson, thank you forjoining us. we wish you all the best. thank you. borisjohnson will meet angela merkel this afternoon to discuss his demand for changes to the brexit withdrawal deal. mrjohnson wants the so—called backstop which is the arrangement to avoid a hard border in northern ireland to be removed — he says it is anti—democratic. but the eu has rejected the possibility of any changes. for more on this we can speak to our reporter in berlin damien mcguinness. what are the hopes when boris johnson is being so adamant he wants changes and the eu adamant it is not
going to happen? that's right and angela merkel supports the eu's lines quite clearly on this. mr johnson will get a warm reception here in berlin, he will get all of the military honours, it will be a friendly reception, but so far there is no indication that angela merkel oi’ is no indication that angela merkel or the german government in general would change their position, which has always been to support the eu's line on this particularly when it comes to the backstop. angela merkel doesn't feel it is her position or her prerogative to even discuss changing the backstop. that would be seenin changing the backstop. that would be seen in germany are spurring ireland under the bus which germany has long said it would not do to an existing member of the eu. mrs merkel is open to changing the agreement looking forward , to changing the agreement looking forward, so the political declaration, she is open to the idea of what sort of alternative arrangements could be put into place when it comes to avoiding a hardboard on the island of ireland.
she has said she looks forward to more details on that. but so far, germany has said they do not see the concrete details that would avoid a ha rd concrete details that would avoid a hard border, and until that happens they are going to stick to the backstop, which of course is the thing mrjohnson says he wants changing. we have had numerous visits for years now to berlin from various british prime ministers who a lwa ys various british prime ministers who always assume that they can win over mrs merkel and that would open the way to an easy deal for britain when it comes to brexit. didn't work with david cameron, didn't work with theresa may, and as far as what eve ryo ne theresa may, and as far as what everyone is saying here today in berlin, it is not going to work for mrjohnson either. it is a waste of time them even having this meeting then? i think germany and mrs merkel in particular with the way mrs merkel operates as it is good to talk, it is good to try and come up with agreement. there is no sense here they are not open for negotiation in general but germany would see the withdrawal agreement
as agreed already so there is no support for the government changing that stance. interestingly, there is no support from business to change that stance either. quite often we hear that german business needs to carry on selling goods to britain, which is true, german business is extremely worried about a new deal brexit. but they are more worried about watering down the single market rules. they are more worried about not being seen to be supportive of other eu members such as ireland. german business tends to think very politically and long term and all the business leaders we have spoken to over the past few years have always said it is more important for them to keep this eu unity together, to keep the single market together and functioning as it does right now, that's why they feel that not having any guarantee about the potential hard border on the island of ireland would potentially undermine the single market and they view that is very dangerous, so that's why, and when it comes to the backstop yet again
germany will not change its position, which is or was been to support the eu on that. thank you. some newsjust coming in — it seems the future of the hs2 rail link may be in doubt. the government has appointed a panel of experts. it will run from london to birmingham related to manchester and leeds. there were reports it could cost £30 billion more than previously thought. transport secretary grant shapps says all options are on the table including scrapping the project. we will have more on that as soon as we get it. yousef makki was killed with a single stab wound to the heart in an upmarket part of greater manchester on 2nd march. he died following an argument with a friend, known as boy a, who said he acted in self—defence and denied murder. he was found not guilty of both murder and manslaughter following a trial at manchester
crown court, but admitted carrying a knife. another boy — known as boy b — was cleared of perverting the course ofjustice by lying to police about what he had seen. boy b also pleaded guilty to possession of a knife, but this was in a different location and at a different time to the incident in which mr makki was stabbed. both boy a and boy b were sentenced to 16 months and four months respectively. yousef‘s mum, debbie, is now calling for their sentences to be reviewed — and for tougher sentences for all knife crimes. i spoke to her earlier this week and started by asking her what type of boy yousef was. very studious, very witty, very lively, very sporty. everything he did, he did it to 100%. he loved boxing, he loved basketball, any sport. he was just a lovely person to be around. he was very popular as well with his friends and his teachers and with his boxing club. did you ever have any concerns about what might be
going on when he was going out? no, because i always... he went to stay at his friends' houses. they were always from, well, what we say, posher areas, and i always spoke to the parents first to make sure he was getting there and what time he'd be there and vice versa. his friends would come to my house and they'd do the same. how did you get the call, or the knock on the door, to tell you what had happened? i'd been speaking to him up until the saturday afternoon. he normally came home to eat about 7:30pm—ish, and i was just watching tv with my other son. the knock came on the door, and i thought it was youssef. and i thought it was yousef. but i saw the flashing light. when i opened the door, the police officer just said, "come with me." all the way i was saying, "what's happened ? " i knew something was bad. he said, "i can't tell you but it's to do with yousef," and i knew. i knew straightaway
what had happened. and, at that point, had he actually died? he'd actually had a procedure because the tree where he fell, it was a cardiothoracic surgeon who lived there. he came out and gave him a procedure on his heart. as he reached the hospital, another surgeon tried but, within seconds, it was too late. did you get to see yousef? i did, after they cleaned him up and everything, yeah, yeah, in the hospital. i mean, as any parent, anybody would just think, "how on earth do you cope with that?" yeah. you just can't perceive it. it's like watching a movie, but somebody else's movie, you know. very quickly, you went from that moment to actually headlong into a trial. the trial‘s already happened. two boys have been... one was cleared of murder and manslaughter but convicted of possession of a knife. a second boy was convicted
of knife possession as well, sentenced respectively to eight months and four months. what was it like going into a trial so quickly after something so dreadful happening to your son and your family? it'sjust like going through the thing all over again. you have a few months after the funeral and everything and then you start the trial. it was a long trial, every day for four weeks. i'd never been inside a court or anything. um... it was... the whole court itself was just unbelievable, it was... the way we were treated, we were put up into a public gallery, weren't allowed to sit in the court in case we intimidated them. yeah, the whole thing was very distressing, especially for four weeks. when you when you say you weren't allowed in the court for fear of the defendants being intimidated... yeah. how were you told that and how did you respond to that? first of all, we asked the cps. they looked into it and came
back to me and said, "you're not allowed in the court because they need their families near them because they're only 17. and, plus, you might intimidate them." and then i asked the court usher. i put a request into the judge and they said the same thing — that we weren't allowed in the court. how did that make you feel? like a criminal. we were just put upstairs like criminals. every time we made a noise, we were told we would be thrown out. there were a lot of young boys there from manchester grammar school, who came to support yousef, and maybe, sometimes there weren't enough seats. they had to sit outside the whole day but they were just there to support him because they loved him so much. you must have seen and heard things in that trial that were very difficult to deal with. yeah. what sort of things were you hearing and seeing that you found especially difficult?
first of all, there were the 999 calls and then there was one of yousef actually laying on the floor bleeding out while the paramedics were dealing with it. that was shown close up on a large screen. with no warning. with no warning whatsoever. we were told afterwards, "0ops, that's a mistake." but once you've seen something, obviously, you can't get out of your head. how did those in yourfamily...? fortunately, i wasn't there that day but close friends and teachers, especially my daughter, she just couldn't get out of her head. she said i'll always think of that vision when i think of yousef. yeah. were there any positive moments for you through that trial? anything that... the only positive moment, well, not moment, but all the way through we were told by the cps we had a solid case, so i didn't feel that the outcome was going to be what it was. the actual day when the verdict came, it was just devastating... to hear them say that. yousef‘s father shouted out, "where is the justice for my son?"
how did you react? how did you feel? i don't remember that actual moment in time because every single person was feeling the same way. his friends, family, we were all in tears, all devastated. so there were a lot of police running around, trying to calm us down. we just did not expect that. the jury decided in the end that the boy who stabbed yousef acted in self—defence after yousef punched him and pulled out a knife. the jury heard the stabbing was an accident waiting to happen because all three of them indulged in idiotic fantasies, playing middle—class gangsters. when you heard that sort of evidence, how did you feel? first of all, middle—class gangsters. yousef wasn't in the same class as the two boys, so they got that bit wrong. gangsters, no. yousef was a boxer.
boy a's family issued a statement afterwards, saying, "there are no winners in this case, yousef‘s death was a tragedy and our son will have to live with his responsibility for the rest of his life but the makki family's hurt and loss are infinitely greater. nothing we can say can make up for that or change it." how do you feel about that? the boys themselves used to moon walk down the corridor and laugh. moon walk. can you describe what they were doing? like michaeljackson. you know, walk backwards, and they'd laugh, or dance about and laugh, every time they saw one of us. and, even when the boys were taken down in court, you know, there was nothing. there was no remorse shown. you know, ithink, to make a statement like that, anybody can say they feel remorse but do they actually feel it? we didn't feel that way. i know that you want the sentencing now looked at. yes. what do you want to happen? um... the attorney general is looking at the sentencing. yes, we have actually taken legal proceedings now.
if not for retrial, then for more lenient sentences to the judge. four months for one of them for carrying a knife, he'll get out in two months. that is not a deterrent to anybody who is going to carry a knife to me. two months is nothing. so hopefully we're going to do a petition. we need 10,000 signatures to take it to parliament, to change the sentences, tougher sentences on knife crime, and also for the whole injustice of everything in the trial. so, first of all, on knife crime, do you have an idea in your mind as to what sentences should be, maybe not even specifically about what happened here, butjust generally? even for carrying an offensive weapon, it should be at least five years. i know that you want changes to the trial system. yeah. what do you want to see? better treatment for the victims‘ families, really. in what way? first of all, they should be allowed to go into the court to hear
everything, at least. if they want to keep them separate from others, then, fine, have a victim suite. i was aware there was a victim suite, but i never actually got to see it in all the days i was there. there are certain things that need to be done in that way. i know that you do feel very strongly about class issues here. yes, i do. yeah. why? what are your feelings on that? because, if it was the other way around, if yousef would have killed one of these boys, he wouldn't have got bail, he wouldn't have got two top lawyers on his case and he surely wouldn't... he just... well, he'd probably be locked up now for a very long time, to be honest. have you, as a family, been able to stop and breathe and actually properly grieve? no, not really, no. no. because it's one thing after another. we thought it would be
over after the trial. now it's just like another trial all over again. your son was effectively described as behaving like a gangster. how will you remember him? i'll remember him as the boy whojust always made me laugh. always came in the house smiling. went round the house all day telling us all how much he loved us and he was just... he wasjust full of life, all the time. that was debbie makki, yousef makki's mother. the cps have told us in a statement, "we know the justice process can be incredibly challenging for grieving families, and, working with police, we work hard to make sure they feel as supported as possible. we have met with the makki family to discuss their concerns about the outcome. we respect the decision of the jury and our deepest sympathies remain with yousef‘s family."
and the lawyers for boy b have told us they dispute the claim that he moonwalked in the court building and they say they've spoken to other people who were in court who have confirmed to them it didn't happen. in a separate development yesterday, two men, aged 18 and 22, were arrested on suspicion of attempting to pervert the course ofjustice over the death of 17—year—old yousef makki. the nhs is to fund a life—changing new treatment for thousands of people with severe haemophilia. nhs england said it has agreed to fund a drug called hemlibra for around 2,000 people with haemophilia a, which will dramatically cut their risk of life—threatening bleeds and reduce treatment times. people with haemophilia a are at risk of spontaneous or uncontrolled bleeding because they do not have enough of a blood clotting protein or it does not work properly. current treatments for haemophilia can require intravenous infusions multiple times a week, but the new drug will cut treatment times to a single injection given
once a week or fortnight. we can speak now to christy stephens whose two—year—old son, christopher, has severe haemophilia. harry stephens, christy's brother, also has the condition, which runs in families. and mike laffan, from the department of immunology and inflammation at imperial college. welcome to all of you, thank you for coming in. hyde, christopher, thank you for coming in, a bit much sitting in a studio —— hi. tell us what it is like living with haemophilia. usually he is a normal two—year—old, quite happy, but when he is poorly, his leg is quite so, at affects him massively because he cannot do normal activities —— saw. very difficult to take him to soft play because he cannot move his legs properly if he is bleeding. mummy!
you want to go over that? someone is there who can look after him. happy already. that is good. 0bviously, thatis already. that is good. 0bviously, that is difficult to explain to a two—year—old and difficult for you. he does not really understand, to him, it is normal life, hejust gets on with it. when he is finished, he carries on his normal ways. he is a happy two—year—old but it is just getting past those points and explaining to him in a way he understands. what is the treatment he has to do? he has factor marry kate every three days. the blood clotting agent —— factor eight. we put his medication in through a tube at home. how much does it impact on
yourfamily life? at home. how much does it impact on your family life? obviously, he has a little sister now, takes quite a lot of time away from her, he finds it quite stressful sometimes, if we do not get the needle then first time, quite stressful for him, do not get the needle then first time, quite stressfulfor him, gets really upset. it is really scary for him sometimes. you have an eight—month—old daughter, she could bea eight—month—old daughter, she could be a carrier potentially like you but would not show symptoms, is that right? it completely depends what her levels are, above a certain level, it may. she may be a carrier. they do not test until school age. how has haemophilia impacted on your life, harry? it has had an impact, not as severe as in the past. i have not as severe as in the past. i have not got haemophilia as severe as christie. the biggest impact has been being conscious of it, taking more care as otherwise —— as christopher. when you have the
treatment, what does it mean, worrying about risk of being cut, getting injured? it takes away most of the rest, your levels go up to that of a normal person. i create no factor eight naturally, it takes it up factor eight naturally, it takes it up to factor eight naturally, it takes it uptoa factor eight naturally, it takes it up to a normal level. this new treatment approved for use today, it can be used to today, what difference will it make to your life? for him, it would be amazing. he could go longer without the treatment which cuts the stress of him having injections. i do not think he would need the port because it is less so he would have it once a week, he could just have it in his hand, his arm. i think it would make ita hand, his arm. i think it would make it a better experience for him. rather than being scared of the needles, he could have it once and forget about it and a longer period in between. tell us more about the treatment, mike. haemophilia, there have been lots of efforts to try to
improve the treatment, why has it taken so long to get to this point? how much of an advance is this? you have touched on, on the face of it, fairly straightforward programme, people with haemophilia are missing a particular protein, and for about 20 years, we have been able to make it safely artificially. some of the problems of plasmas have been sourced... still stuck with some problems, one of which is it has to be given intravenously which is why you need a port sometimes because it is very difficult in children to do that. it only lasts a relatively short time, have gone after 8—12 hours. another problem in some people with haemophilia make antibodies against the protein, treat it like a foreign protein. all three of those problems are tackled by this new treatment. it is literally a simple injection? well,
it is given under the skin which is a lot simplerthan it is given under the skin which is a lot simpler than giving intravenously. why wasn't that able to be done before? well, factor eight isa to be done before? well, factor eight is a very big molecule and there are two problems. it will not get into the circulation under the skin. you cannot take it orally because he would die just yet. there isa because he would die just yet. there is a concern about antibody formation —— you would die —— digest it. there are two types of haemophilia, haemophilia a and b. it. there are two types of haemophilia, haemophilia a and bi know you were a carrier and you passedit know you were a carrier and you passed it onto your i completely accepted it. i thought, ifi have passed it onto your i completely accepted it. ithought, ifi have a child with haemophilia, i will be
fine. it took a few months for me to accept it because i could see especially when he had his operation how hard it was for him to get over it and you have a lot of guilt for a long time. it is not your fault. you have passed it on to them. to me, it is almost my fault he has got it. when he is happy, he is fine. it is just when he is poorly, it takes its toll. your brother has been a good support. yeah. we have a younger brother as well he was really good with him. he helps with my younger brother's factor eight as well. he sees when he is older he can do it a different way. thank you for coming in. he is very happy. thank you. we have just been hearing in. he is very happy. thank you. we havejust been hearing police searching for a six—year—old, lucas dobson, who fell into the river stour in kent have found a body. the body has not yet been formally
identified but the family of six—year—old lucas are being supported by kent police officers. tonight sees the final episode of a three—part documentary about jade goody. jade was catapulted into the spotlight in 2002 as the youngest—ever housemate on big brother and she went on to become one of the biggest stars of reality tv. but she also experienced the darker side of the industry when she became embroiled in a racism row after appearing on celebrity big brother in 2007. the scandal saw her outcast by the public and vilified in the media. tonight's episode covers the final months of her life before she died of cervical cancer at the age of 27. in a moment, we'll be speaking to people who knewjade, but first, let's talk to our reporter anna collinson about her legacy. it was ten years ago, a lot of people obviously who were not... they do not remember quite how big an impact she had when she suddenly
burst onto the tv screens in 2002 and very limited life after that, but we'll ups and downs. absolutely. 2002, 20—year—old dental nurse from vanity and has big brother house. people loved her, people hate her —— from bermondsey. the tabloid media despised her. she drank, got naked, she thought east anglia was abroad, they won't —— they wrote horrible headlines, vote to take out, and flattering picture of her face. but others loved her. they were not used to seeing someone like her on the tv —— unflattering picture. she came fourth on the show. she was the real winner of big brother. she released autobiographies, perfumes, dvds, she became the first—ever reality tv millionaire. she ran into real controversy when she went back into the big brother house, celebrity big
brother, got involved in a race row over shilpa shetty. remind us what happened and the reaction. she went in the house with her boyfriend, jack, and her mum. the producers admitted they wanted to show to be a huge hit so they deliberately created tension. jade ended up forming a gang with two other co ntesta nts a nd they forming a gang with two other contestants and they can on fellow co ntesta nt contestants and they can on fellow contestant bollywood star shilpa shetty and we will play a clip which gives you an example of how the nastiness started —— they turned on fellow contestant. there are some content that people might find offences. —— offensive. anybody for bleach? what is that? bleach! it's bleaching your facial hair. she shaves her face. has she got a face like a man? like a wolf boy, probably. it started to be... she walks out with that on her face.
yeah, saying "i've got big, hairy face." i must bleach. the mimicking of her accent, just the start. things got worse. racist language, fights, swearing, they told her to go home and she ended up feeling like a real outsider and it was really difficult to watch. 0n the outside, the public were outraged, more than 40,000 complaints to 0fcom, a record number at the time. burning effigies of jade in india. when she was evicted, she realised the scale of the reaction, she was traumatised, made grovelling apologies in floods of tea rs grovelling apologies in floods of tears and those closest to her were concerned for her mental health. the documentary suggests she was not malicious but what she said was racist and it highlights what was going on in britain at the time, racism still existed, but it was hidden and people were ignorant to what racism was. duty of care has become a hot issue now around
reality tv, what was it then? at the time, jade was a vulnerable young woman, her mum was a drug addict, but when she went on house, she was allowed to get drunk and make mistakes. 0n allowed to get drunk and make mistakes. on love island now, they are allowed one, two drinks a night. when row happened, racism row, the producer said they did not know how to handle it. now there is more in place to stop it happening but it is still a huge learning curve. a p pa re ntly still a huge learning curve. apparently there was an mp select inquiry looking into reality tv. the thing the documentary points out finally as the reaction to the race row, along with the offensive headlines, bbc presenter andrew neil described the three women as an underclass. edwina currie described them as slacks. he would never see that language in the national media in 2019, huge outrage if you did. social media was not even around
then. thank you. let us talk now to... lucie cave, editorial director of bauer media who also ghost wrote two of jade's autobiogrpahies. we're also joined by jack tweed, jade's husband who married her shortly before she died. and hayley prince who says that her cervical cancer was only diagnosed as a result of her being screened afterjade. thank you very much forjoining us. is itfairto thank you very much forjoining us. is it fair to say, lucie, when she burst onto our screens, we had never seen anything like that before? she was a character, somebody nobody had seen on tv, she was the mark of the new wave of celebrity. that is what the documentary lays out. to change the documentary lays out. to change the face of reality tv forever and she was around, when she burst onto the scene, a real optimistic moment, i guess, the scene, a real optimistic moment, iguess, in the scene, a real optimistic moment, i guess, in the political world as well. she was a sort of symbolism of anyone can do anything and i think thatis
anyone can do anything and i think that is how she made her mark. people saw her on tv and thought, if she can do it, i can do it. she came fourth, but she ended up being the real star, she is the one we remember and she had such a massive impact. in her very short life after that. but it was a real modern—day tragedy, highs and horrible lows.|j worked at heat magazine at the time andi worked at heat magazine at the time and i goes right at her books and she would come to my house and tell me stories of when she was growing up, you could not make it up in terms of the tragedy —— i ghost wrote her books. her dad was a heroin addict, she had highs and lows in being brought up by her mum. she essentially brought up her mum. when people started to understand the back story of how she ended up on big brother and why she had gone on, to escape her past, that was pa rt on, to escape her past, that was part of the reason people made an about turn. the producers, we were talking about duty of care now, were
their real considerations than around the vulnerability? when people went on reality shows back in the day, they were tested, they would speak to a psychiatrist, but i do not think the level of care now and responsibility people see they need to give these contestants was remotely apparent. you look at the things they allowed them to do, drinking games, she ended up naked on tv, just the fat people were talking about her in the media in a way that would not be seen as remotely acceptable now —— just the fa ct remotely acceptable now —— just the fact people were talking about her. how do you feel seen the documentary, being part of it, and being reminded of things that maybe you didn't know about and may be forgotten about, in some cases, jack? yeah, the first episode, when jade first went into big brother, i
must have been 12, 13. i didn't really watch it or know the extreme of the media, how they abused her. that was a shop, saying that, get the pig out, vote the take —— a shot. they would not get away with it nowadays. that brought her back, ina it nowadays. that brought her back, in a way. i had not heard her voice for a while. that was hard watching it. did she speak to you much about what happened and how she felt after that race row and being... you were in the house with her. her mum has spoken of the fact it haunted her until the day she died. yeah, it did, it willend until the day she died. yeah, it did, it will end her. when i came out, i saw her the next day in the priory, i have never seen anyone like it, staring into a blank full,
not speaking, she did not know who anyone was. “— not speaking, she did not know who anyone was. —— blank wall. it got her deep. jade was not racist. everyone around her knew that. that was the worst thing someone could call her to her. what did she... what did she say to you about after she had the treatment, she came out, she had the treatment, she came out, she carried on, she later got the cervical cancer that tragically cost her her life, but you said she effectively never got over what she had been through and it ruined her, how did that manifest with you? yeah, it was horrible to watch for, obviously. everything she was trying to do since that day was try to prove to everyone that she wasn't the nasty racist the media was calling her. ithink the nasty racist the media was calling her. i think that is why she we nt calling her. i think that is why she
went out to the indian big brother to sort of make it up and prove things but everything came crashing down. devastating, it was when she was on the indian big brother, called into the diary room to be given the dreadful news. yeah. what was life like after that? sorry, after she got the news? yeah, for you both, you got married, but not together for long before she sadly lost her life. it was horrible, obviously. we did not know it was terminal straightaway. not a nice thing to go through. when she did hear that it was terminal, still in the back of your mind, still hope and pray, this cannot be true, jade will pull through. even up until the la st will pull through. even up until the last day, still live with hope that it is not going to happen. hayley,
she had a big impact on your life because after knowing what jade went through, you had a cervical cancer screening and it effectively saved your life. yeah, it did. her death and herjourney your life. yeah, it did. her death and her journey prompted your life. yeah, it did. her death and herjourney prompted me to go and herjourney prompted me to go and make an appointment and actually go through with it and attend the appointment, not put it off any longer. i had the same diagnosis as jade. had she not gone through that journey herself and publicised everything, i wouldn't be here now. i own my life to her in a way, really. jack, you have said no one can pester —— i my life to her. how do you remember her? you have said no one can compare to her. she put up no one can compare to her. she put up with me before herself, no matter what situation. she just cared about everyone else first. thank you all
very much forjoining us. jade — the reality star who changed britain, is on tonight at 9pm on channel 4. the last part of that. and if you've been affected by issues in this discussion, there is a range of organisations and websites that can offer you advice and support. you can find them listed on the bbc‘s actionline website at bbc.co.uk/actionline. now, thousands of children are growing up in converted shipping containers and office blocks in cramped conditions, a new report has found. the report by the children's commissioner warns that temporary accommodation is frequently not fit to live in and children are spending years in interim housing while their families wait for an offer of permanent accommodation. councils have blamed budget cuts, but the government insists it's invested £1.2 billion to tackle all types of homelessness.
we can talk now to lulu abu baker — she has four children, including one who has severe autism, and they have been living together in a converted shipping container since december. the place we are living in at the moment is a cargo container, shipping container. it is not a good place for any kind of family. any kind of family. ifeel sorry place for any kind of family. any kind of family. i feel sorry for whoever lives in this building, this building is not for human beings, this is a mental torture, people's trust, all over the place, i have a special needs child almost 13 now and he has severe autism, many difficulties, he has not spoken yet. it makes it difficult for me to make him understand, why we are here, what we are doing here, he does not understand anything. i feel so, what we are doing here, he does not understand anything. ifeel so, so sad for him. i feel sad for my other
children and sad for myself because i cannot give a better life. and we end up in this place. the five of you in that container, how small is it? very, very small place. i am sure i will let you guys recorded and show you how it looks. a little tiny corridor and we have a tiny kitchen you cannot even cook or do anything because kids are around playing and we have a tiny, tiny corridor and the two little boxes of dreams. me and my son stay in at the rim and the other three children stay in another room —— boxes of rooms. how old are the other kids? your son is almost 13. i have an 11—year—old, ten—year—old, two and a half —year—old. 11—year—old, ten—year—old, two and a half -year-old. are they able to have anything like a childhood, normal childhood, living in these
conditions? not at all. i wanted to tell you, because we are very stressed and here, the kids are stressed. they cannot play, they cannot do anything, that is nice is for them to do their homework on the for them to do their homework on the for them. all our clothes are in boxes. we have no cupboards, no tv, no...the boxes. we have no cupboards, no tv, no the only way we come down my son with autism, we give him sensory toys. we cannot have that in the house. it has to be up off the ground so he cannot easily lift it. he is locked like in a prison. prisoners are better than us because they have time, how long they will stay there. we do not know how long we will be here and when we will leave from here and what day we will do something about... 0r leave from here and what day we will do something about... or the council
will do something for us. how long have you been there so far? nine months exactly now. you do not know exactly how much longer you will be there, what conversations have you had? the council do not listen much because i did do a lot of reports, i wrote reports, the local authority, i have two social services, the school, social worker... i have two social services, the school, social worker. .. thank you very much indeed forjoining us, thank you. and thank you for your company today. bbc newsroom live is coming up next. see you soon. mixed fortunes across the uk today. northern and western areas, pretty cloudy, wet and windy. you can see from the satellite imagery,
beautiful image, weather front stretching into the atlantic, pushing into northern ireland and scotland, but for england and wales, clear skies, sunshine across england and wales this afternoon. the rain spreads further east across scotland in the meantime, quite heavy at times across northern ireland and western scotland. strong winds associated with that. further south and east, staying dry. the rain will continue to move south—east, fragmenting and breaking up as it pushes into northern parts of england and north wales, a bit of rain here first thing tomorrow morning. elsewhere, dry into thursday. temperatures into double figures. more rain expected on friday, but for england and wales, dry and bright. temperatures on the app. 24 in london tomorrow afternoon. goodbye. —— on the up.
you're watching bbc newsroom live. it's11am and these are the main stories this morning. the government has announced a review into the high—speed rail link hs2, with transport secretary grant shapps saying all options are on the table, including scrapping the project. give us exactly where we are up to, really genuinely what it would cost to complete this project, and then we all know, we'll be in a much better position to make that decision, go or no—go, by the end of the year. a body has been found by police searching for six—year—old lucas dobson who fell into the river stour in kent on saturday. borisjohnson will meet german chancellor angela merkel in berlin later today to repeat his demand for fundamental changes to the brexit