tv [untitled] January 27, 2013 8:30am-9:00am EST
people who think conspiracy theories conspiracy that are not set up a conspiracy is when one segment makes a play and against the interests of another segment and the other segment doesn't know anything about it. and when it comes to matters of mental health and therapy. guy. was my. half. of the time it's. just getting back to q. . was. trying to. was just. haven't done it.
and i think until you know even in the medical school curriculum you know. when to talk about a t.v. an important it is commitment to going to the next generation. is not just ignorance and stigma associated with a disease but a lack of compassion to keep. my. by nineteen ninety five h.i.v. infections among black americans had surpassed white america. blacks accounted for forty percent of all newly infected age hiv cases. the most startling discovery was to learn that african-american women accounted for a greater proportion of new aids cases among african-americans overall in two thousand and three. it rose to become the number one cause of death for black
women ages twenty five to thirty four and persis this day. after ten years from now. my husband and three year old daughter and at the age of twenty nine discovered to have aids my third child was born very sick. we didn't know what was wrong with her and no one was able to tell us what was wrong she was in and out of dol spittal and by the time she was about to my husband began to get sick my husband wasn't feeling well he had a cough and we kept going to different doctors feel they kept misdiagnosing him first they said he had allergies they gave him allergy shots then they said he had tb they tested him he said he's fine it doesn't have to be after about a full year of trying to figure out what was wrong and they then said ok your blood
count is really low he wanted to be emergency room and they said well you probably have a bleeding ulcer so let's admit you to the hospital and let's check you for you know where that is and we can take care of it they kept misdiagnosing him because he was a family man he was married we owned a home we had children in private school so we didn't fit that stereotype of what people with aids are h.i.v. look like people have histories people have done things in their lives my husband did do. but he had been clean for over ten areas so they didn't see any marks they didn't see anything that they thought was suspicious i guess that's the assumption and sold him ever asked him so what happened is that people's perception of who got aids got in the way. so by the time they figured it all out
he did not have a bleeding ulcer and they then said ok we need to ask you some other questions you know have you ever done drugs and those type of questions and then he said yes several years ago when i was in the service. and they tested him and he came back with full blown aids. fell even while my husband was sick and dying in a huff but all the you know i made up i did like many of us that you know i made up stories of what he had i been one telling the truth. because of discrimination because of fear because of him i don't want to people to be afraid of me he die on january first new year's day of course it all made sense then what was wrong with the baby and then she died. on in june of that year.
i tested myself and my two other children thank god they were healthy and they did not have virus but idea when i was diagnosed i was very sick i was eighty pounds i had no t. cells and i was extremely ill so i was diagnosed with aids diagnosis not an h.p.v. diagnosis i was given less than two years to live in the course of six brief months lost her husband of ten years three year old baby girl and was herself diagnosed with aids. when she reached out to her family i'm blessed that i have a family that i do we don't talk about it but i've never felt like they were afraid
to be around me for many of those newly infected with hiv and aids silent except in spite family and friends is often not enough after everything happened i went to one support group then it was all guys they were nice men. and i was the only woman. problem with that was many of those guys were talking about things like how do i tell my parents or my family that i am homosexual and now they were those were dear conversations and their fears and their discussions of course when i brought up i am in a panic i just lost my husband my baby i have an eight in a four year old i'm going to die soon what do i do it my kids i have to stop working i'm now on disability i went from two incomes to a fixed income a disability check i'm trying to figure it all out so of course i think i'm going
to die because that's what i was told and for women for mothers are our focus now becomes not even about herself. it's about our children what's going to happen to our children my children are going to be orphans i can't even stand to be in the house with them and watch them playing because i was so heartbroken that i'm going to be leaving and i couldn't identify with the guys in the group so i figure i need to talk to some women and see in my only one that still are with this or or. recognizing that her doctor was seeing other female patients who had h i v. came up with an idea i asked my doctor if i could put a flyer in our home in her office. some of the women so long the whole flyer in her office i put a secret phone line in my home because lots of family and friends didn't know i was dealing with this issue and lo and behold the phone started ringing and i started
we started talking to each other just on the phone none of us wanted to show our faces and as we became more comfortable i would meet them in a coffee shop we started giving each other support that way and then started to support in my home where women will come together bring their children and we will just talk cry prepared for that and all of those things that we were doing pretty much on. women's group revealed concerns. from a support group who quickly realize that services for women were non-existent if moms need to get to the doctor she was given a token to get on the bus to the doctor. she was given enough tokens to take the children to the doctor with her so basically she had no childcare she had no transportation so she couldn't go to the doctors she ended up not seeing
a doctor for we became a network of women and we shared our our very limited resources we shared our trans. and we help each other try to doctors' appointments i ended up keeping lots of children in my home. they don't get put into the foster care system so i would say driving children to all different schools all over they see in maryland including in addition to mine so they don't get put into foster care system. that's reluctant a handful of shy women soon blossomed into a forceful group of brave souls. no longer able to accommodate the growing number of each i.v. paused of women in her home. wrote a grant got funding and started the women's collective in washington d.c. . women are caregivers we are taking care of not only our children.
to better understand why h.i.v.'s thieves are still so persistent in the black community we checked in with you. straight after all it is they who will determine the face of the disease in the years to come. you know sometimes you see a story and it seems so poorly you think you understand it and then you glimpse something else you hear or see some other part of it and realize everything you thought you knew you don't know i'm sorry welcome to the big picture.
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is eve eve eve. eve eve. six. i think education is definitely one of the more important pieces to it because people are getting wrong information in their sprains wrong information out there we learned about the technical aspect of hiding catch it what it is what it stands for by. not like percentages and things like that who are mainly affected by. yes
just like general education knowing that stuff like when i took such that in school you never really learned about a child being late we just learned late about puberty and about how to put a condom on but they don't really teach you stuff like hiv prevention and who falls into that category of who has it we're minimum incensing we're going to show you are great men having sex they don't shoot at all here you know it's very important to know about going to times about a man and woman having sex and the risk of what happens whenever a few minor femur a male male be to broaden a larger so we know you know we need we need to be straight you know he gave me no information and curse and i think it's also important that parents talk more with their children about it we don't talk a lot about that with us kids even today it's still kind of hard to broach that subject with the young people but it is so important. and i'm
a famous live as you do in the back you will get a true she's made it all the time to do mom i'm a very early in turns to look rough you know you know that you doing the right you're going to get a mug that i'm pretty sure that's not cancer that's how you catch it ok it's so she found out how to really get it she was like a lot that was a game as disease i thought they were given to us and i thought best how did you get it just from doing that i didn't have bad day and he was like you know this and i get put out i did finally how when parents automatically assume that your child is going to be shared i mean and they kind of forced me to live that is why a lot of conversations about hiv and aids don't really it doesn't really happen in the household because you're taught. you're kind of taught by your parents to be straight and you know to talk about anything that involves your sex life because you're not street is conneally you know taboo to be. into your house it's
a good i'm not going to talk about you know things that i can get you know by having sex because my mom doesn't want to hear about me having sex with another guy and for me is not even about just having sex with the same sex or opposite sex it's not having sex at all so it doesn't get beyond if you don't have sex and i'm not even when say you marry types of just on sex and you know procreation what if i'm thinking about it like you know i'm interested and don't i can talk with my parents about it or i don't feel like i can talk to them about that because they already say what they expect it is so now i have six so i'm like ok if i do have sex what will happen i can get pregnant well what about this and my kids. i don't know what they are i'm young i don't know and we slow mo h.i.v. we don't need to get to that because it's a don't have set i think many more open dialogue about it people are still very very nervous about talking about their sexual health and their sexual behavior talking my sex is pretty normal with my group of friends but when they consummate
h.i.b. and like education step s.t.'s on it. that's not their homeland it's really awkward but we do talk about it it's not like it's not existed but usually when i hear other people so my mouth is usually like all some mind as unattractive or ugly wealth as on their person not their sauce or. are you that all this other stuff so it's usually in a negative not inspiring or educational light but with my personal friends my close friends is usually like look we be educating people or we're just talking about trying to figure out what what we know or was true is mind simply just saying i'm a child be on my place and all the blame on the other person all the blame will myself and both of those are really unhealthy and can like f. up and i see a world. where if the people manage to stop. with the abundance of information now available about h i v. young adult snub their noses up the
statistics they believe that as with vitamins all they have to do is pop a pill if they should become hiv positive now a community like we do desensitize ourselves so much from aids i mean that people as i always a mental disease if you can manage it you've got to have deep pockets they manage it i mean if you don't have insurance because i don't think the average person can pay fifteen thousand nine hundred dollars in rent and still pay two hundred dollars a month for medication and for those for whom money is not a concern there is a physical cost to taking drugs to fight hiv take four pills of clean i take one pill i take a bactrim pill because to keep infections and stuff away and then i take. the rocky which is helps with the pain in the morning. and so i take that as this clock in the morning i wake up thirty to take medication because. i did two hours to recover
from second the medication and i had to go to have my pill container and i'm out of water in the mornings when i wake up i just open the pill bottle to take the pills drink the water may back down let the side effects go through this nazia stomach pain tiredness everything that i go through just let it all go through enough to two hours i'm good. the data is that. even well treated even with the best drugs someone with a just going to live a shorter life than someone doesn't have aids and i you know i have a lot of friends on these drugs at this point both in africa and here and you know if they could go back and change that and live a life free of a trivium i know for sure for certain that they would. with thirteen percent of the population yet we have the highest rate of infection again it goes into not a single answer if i look at how blood pressure what we be i looked at colon cancer
where will we be if i look at breast cancer where will we be if i look at. it to one it is clear that the tremendous growth of hiv and aids in america's black community is driven by many factors yet no matter whom we spoke to physicians clergy political leaders and those afflicted with the virus it was clear that the real culprits behind the epidemic are ignorance miscommunication and most importantly a collective silence about how it is transmitted what it means to live with hiv and its phenomenal spread across black america. if we sincerely want to help the spread of this virus this is a problem that frankly is substantially preventable if there were really good public health campaigns if people were really focused on this problem you certainly should be able to have a lot less a trophy
a lot less human suffering and you would and that would mean a lot less energy and resources both in better societal level but also personally trying to deal with it down the why would someone thirty seconds i was in london in the mid one nine hundred eighty was saying you couldn't turn on the television without seeing the commercial about age having a child be a child be you know can protect yourself get tested etc you know day after day after day after day after day after day after day. that's public health education in my view that we have not hand at a level of intensity and public health education. where we still don't have a bill we are still talking about any increase in the number of cases and we need to talk more to people who other people trust in the communities like for example the hair salon the barber shop we go there all the time we have conversations in there about everything you know so you know getting the right information into
places like that places of worship getting the correct information that's a beer can can really help kind of hope this disease if they do think that you can more conversations better you don't necessarily need leadership from the church to push you really need is leadership from somebody right so well that happen to have been the case and he came to that was there was a pair of ears quite right larry kramer was a real leader in this conversation and in zimbabwe and in uganda in congo there were singers who were leaders in his conversations and in other places or political leaders who didn't maybe could be almost anybody can write maybe somebody has to stand up and take this on it doesn't matter who it is it's just long as i don't personally care as in his her system. kelly and i think what's going to eventually happen as far as our community is that we need to start letting young people and even young people just people in general understand the power of their voice because eventually was going to happen is that. the new media is going to be this
cell phone ok because as they see things put the video because now cell phones you could upload photos directly to youtube all these different things is that now they have the power to tell the story. as more people living with hiv step forward to tell their stories we will no longer be able to ignore them and pretend we are safe the conversation must be taken to the schools inside the homes and throughout the community to eradicate the myths and fears that feed this preventable disease. today african-americans account for fifty percent of all new h i.v. infections every year unless we start talking to each other we will become dependent on drugs to live. with succeeding generation.
live and me. why would she. did each i.v. how did you do to us before what is the most pressing you know penis underground labs beneath the radios would you fall from. to africa. conflicts with biology and other. districts knowledge. just so. you know fisa how to travel across borders. late all how to look for was. if you get. a sense you know to see you know plenty who can identify with the life he's business disease goes in the video begin. to kill this disease and it's significantly prevented from being ignorant can feel when we have a little. different but we suffer the same she. sees.
to offer. there are twelve cities in the united states in which half of the people with hiv aids lives within a year of a diagnosis of. over sixty two percent. with this is a problem that frankly is substantially preventable it was like the big elephant in the room and nobody wanted to talk about it there were really good public health campaigns that people were really focused on this problem you certainly should be able have a lot less h i feel a lot less human suffering. wealthy british. markets . find out what's really happening to the global economy.