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tv   Beyond the Headlines  ABC  October 11, 2014 1:30am-2:01am PDT

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throw and you don't want to try this throw. 24-17 game and he ice itself with under two minutes to go and diving for the end zone 34-17 and the cardinals improve to 4-2. >> i am dplad we have -- i am glad we are starting to put it together right now. we are going to keep on getting those wins one at a time. >> tonight is the first night we look like us and felt like us. i thought our runners came out and ran hard. the offensive line blocking well. we all had a tough game and tough week last week. he threw the deep ball and threw extremely well. >> and cal hosts washington tomorrow afternoon. giants getting ready to open the nlcs and you don't want to play extra innings with the royals. sports next.
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the giants included slugger michael morris on their national championship league roster. morris has been out with a strained oblique muscle. giants and cardinals in st. louis. bumgarner starting against wayne right. the cardinals beat up on the dodgers. madbum felt good with that. >> they were pretty comfortable facing left handed pitching. that just tells you how good a hitters they are. i just have to be careful and have to make pitches to them. hopefully the ball will bounce our way. >> the royals and the oriels. pumped up for this. the ball skims off his shoulder and beams him in the neck. don't make alex gordon angry because you won't like him when he is angry. revenge in the 10th. a solo blast and went three
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for four with four r.b.i's and the royals do it again. they win their fourth extra inning game of the post season 8-6 inngs. innings. they are smoldering hot. >> wow. talk about bouncing back.
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wake up weather. your saturday morning will be off to a foggy start around the coast and the bay. we are expecting a crisp morning, upper 40s to upper 50s. by 8:00 a.m. low 60s. dan and ama? >> thank you, sand -- sandhya. >> abc7 news continues on-line, twitter, facebook and all of your mobile devices. our next newscast is 5:00 a.m. >> right here and right now on jimmy kimmle, martin short. our helps -- oh, jamie,ool you got a little something on the back of your shoe there. a price tag! danger! price tag alert! oh. hey, guys. price tag alert! is this normal? well, progressive is a price tag free zone. we let you tell us what you want to pay, and we help you find options to fit your budget. where are they taking him? i don't know. this seems excessive!
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decontamination in progress. i don't want to tell you guys your job, but... policies without the price tags. now, that's progressive. . >> he has parkinson's disease, why would i come out at this point? it's not like i discovered this a month ago or two months ago. i've had it 12.5 years. >> that announcement by the legendary talk show host ray owens. he kept his secret for 12 years. welcome to "beyond the headlines." ron owens in the san francisco chronicle las agreed to talk to one television station ability his condition. he is here with us today with his wife jan. i am so grateful to see you both
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here. so thrilled to have you here. >> it's so wild to be in this building. you have both spent plenty of time here. ron has been a recipient of the marconian award and awarded one of the great 25 talk show hosts of all time. jan had her own distinguished career and was enducked into the radio hall of fame for her work. she also writes children's books. and they have two.itself right now they are all living with parkinson's disease, when one person is sick, everybody is involved. so thank you again for being here. >> it's a stroll taking a strol down memory lane here thinking about your careers. it's so remarkable. ron, let's talk about you first, you decided to go public after robin williams died and he was revealed he had parkinson's disease. >> well the basic reason was
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that after 12.5 years, you get to the point you know at some point you have to go public. when i saw that robin had it and was diagnosed five months before, i basically didn't think that was the reason he would have committed suicide. i wanted toem people to understand, i have lived with it for 12 years. it's not a death sentence. nobody likes to hear it. but when you live wit, you just make accommodations for it. it's just a regular way of life. i wanted people to be understanding this is not, things happen in life. you play the hand. that's all. i thought it was a good time to do it. >> yes, jan, i know you had a big role in this. >> yes, when ran was first diagnosed 12-and-a-half years ago, we had talked about should he go public right then? he decided since he didn't know how it was going to progress, he was going to get asked a lot of questions he didn't know the answer to.
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it was better to sort of keep it under the radar a while. even though ran's parents passed away, my mother was living. i was concerned about how worried she would be in she knew that ron was dealing with and and we were able to keep it from her. i'm glad we were. there is nothing you can do about it. you know, if someone you love rkinsons, you parkinsons, you ne with it. you don't need to dwell on it i guesst the thing every single day. >> when you told your daughter, did you wait, hesitate? >> i told him right. anything happens, we talk about it right away. no planned thing. this is what happens. we take it from there. >> they were young. they were teen agers? >> they were 11 and 13 at the time. i think now they probably don't remember a time when he has parkenton pson's. it's been a part of o life the
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last 12.5 years. >> you were joking, you said when you walked in here, do you want me to shake. >> jan noticed it. we were having dinner. she said, you know your hand is trembling a little bit. so i went to a regular physician. she said, yeah, it's probably an internal tremor when you get older that hams. so i still went and asaid, do you want me to see somebody? he said, it might help. i went to see a neurologist, that's when i found out i had it. >> did it take a while to get the diagnosis? >> he did it in about 15 minutes. we did a bunch of tests. within 15 he utes, he says, that's what you got. >> how did you process that? >> denial. you get in the car, you think, did iup hear what i thought i heard? you start to live with it. you look it you were. that's basically all it is. >> it's interesting, because you are not just an ordinary
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citizen, you are very high profile. both of you are. you went on social media and talked about it one time. but your facebook fans when you went public had some wonderful comments. we have a couple we want to put up on the screen right now. >> they did. >> one of them is from joan. few can get that facebook posting on the screen. she says, thank you for sharing a cause that gets more positive attention when celebrities are involved. best wishes to you. we also have one from jackie walker, so grad you are doing well. there is no way parkinson's could ever define you. >> that was my worry. >> you had been talking about that. >> that was my absolute worry. i didn't want to be defineding michael j. fox, a great actor. the first thing you think is parkinsons. i felt that after almost 39 years in the bay area, i did not want to be identified by it. i wanted the quality of work that's fair t. fact they had parkinson's, so i, do i didn't
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want people to say, oh, poor ron. no, i don't need. that we do it one time, say it. by the next day, everybody's forgotten it. you move on. >> hold that thought we will take a break. when we come back, ron's doctor doctor will join us to talk about long treatment an treatment for parkinson's disease if general. please stay with us.
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. >> i'm hoping that doing what i did, somebody hears or found out they might have it, they turn around and say, yes, this disease really sucks, but i can battle it and still live a terrific lie. i have been doing it the last 12-and-a-half years. i will be doing it for a long time. >> you are so blessed. we are talking with ron owens and his wife jan black. joining us is his doctor, a professor of neurology at ucsf. thank you for being here. >> you are quite welcome. >> you an expert on this. when you talked to ron, did it take a while for guys you worked with him? >> ron and i have been working five.5 years. when he saw me, the diagnosis had been made and he wanted to optimize his symptom control.
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>> he was jokening on the shaking things in his hands. what are some of the symptoms? >> parkinson's disease is the way the brain's motor controlling areas deteriorate. so the movement type symptoms, classically tremor, particular when the arms are at rest. slowless of movement, whether handwriting, getting up out of a care. problem with stiffness of the muscles and difficulty with walking and balance. >> i noticed he has a band aid over a couple fingers. you talked about that. >> well, you tend to fall every once in a while. if you are clutcy and i did. so this one i fell and broke a couple of bones. it will be fine. >> ew. >> it's a good story. >> how did you find dr. marks? >> there was a neurosurgeon. we were talking and he was saying there were two really
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incredible doctors in the state of california and that one of them was in straem. the other in san francisco. he's the guy in san francisco. i'm not going to turn that down. >> that's perhaps little exaggerated. ron. thanks. >> i think it's true. >> dan i imagine you are a part of this discussion, too? >> i have been through one appointment with ron and dr. marks. at this stage of the game. >> he's mobile. >> independent, exactly. so, it's really not an issue. he gives a full report on what he's told at every appointment and that sort of thing. >> we want to emphasize, ron has been an ideal patient, because he is so participatory. he takes control of his parkinsons, he has issues he wants to focus in on. he has the care grifr presence,
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it's very important. >> all right. >> you are a celebrity. you are a celebrity. there are so many celebrities out there who like ron kept a secret. we have some of the people you might recognize at home. j. fox, you work with his foundation and charles schultz, the creator on linda rond stat and nobody wanted to go public. why? >> i think i said before, you don't want to be defined by it and you don't want people to feel sorry for you. >> sometimes there comes a point where we joked about this. if we are at a restaurant and ron is a little slow getting up from the table or stumbles a little bit. you i don't know e don't want people to be thinking he had a few too many drinks with fin i dinner or something. >> not necessarily. but you know i think there is the balance when you no longer feel comfortable hiding it.
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>> we had talked just before we got started before today because of some broken problems. >> i think there are more symptoms, difficulty walking, anybody with a serious medical condition may be reluctant to discuss it if there they're a public figure. there are some unique things about the neurological conditions. >> ron is amazing the way she taking control of this just before we got started, did you take your meds? >> yes. he's very good. he does have to take them. >> five times a day. then i take another one during the day. >> what kind of medication are you on? >> it's called scalivo. i take it at 12, 5, 3rk9s and 12k3w4r6 you say you can control the symptoms? >> yeah, there is at love o research going on. a list of our treatments don't
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cure the disease but they can effective at treating symptoms. the medication you are ob is a medication available for a number of years. it replenishs the brain's doping levels that parkinson's causes. >> we have a lot more to talk about. coming up in just a missouri we will be talking about the ground breaking treatment of parkinson's disease, why support parkinson's disease, why support is so importan ♪ oh yeah old el paso's got a bold new stand n' stuff shell that's blasted for nacho cheesiness oh yeah! ahhh! what is it? there are no marshmallows in this box of lucky charms! huh weird seriously? what? they're magically delicious!
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. >> welcome back to "beyond the headlines." we are talking about parkinsons with radio show host ron owens, his wife is here and his doctor. we want to get back to this book you edited on deep brain stimulation management. this is a long term. ron was talking about the medication he is on. for folks who get to a certain point, they might want to
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consider this, but take me back to the medication you were using earlier. has it changed? >> right. once we learned parkinson's causes a key chemical in the brain dopamine, we found a medication that can be used to replace those levels. fortunately, there have been a lot of advancements since the 1960s. the medication you are on, ron, a triple combination medication that allows the drug to get into the brain and work more effectively. last longer. you found a specific extended medication it tames i takes him into the bedtime to last through the night. we have a lot of different strategies, many which ron has not needed or tolerated. >> this is for far more advanced cases tan ron? >> yeah, brain stillsulation a pace maker for the brain, it's a stimulator that controls the movement symptoms. we use this when the medications do not adequately control the
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symptoms. for some people that's five or six years after the diagnosis, for as many it's 15 or 20 years later. >> ron is doing extremely well. >> i don't need the operation. i need that like a hole in the head. >> that's what happens, it's a hole in the head. >> i know you joked about not wanting to do that. you are not anywhere near that point. >> i hope not. >> did they control all of the symptoms? robin williams had the depression issue. do have you the depression issue, also? >> well, i have clinical depression. so parkinsons kind of feeds into that. i was at 40 or 50% of people who have parkinsons has depression issues. it makes total sense. >> extremely common because the dopamean controls movement but also controls mood. so parkinsons causes problems with mood and thinking and other functions of the brain as well.
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>> one of the things we have noticed with ron is the thinking on the radio, it's crystal clear. so, jan, do you find he is moddy? >> yes. >> well, i seriously think he has always been like that. >> moody? >> before the diagnosis. then you got on anti-depressants. it makes a big difference i think in terms of his moodiness. i've often wondered, is this a symptom showing up be every the tremors did? >> that's a great point. even though we classically think of parkinson's as a movement problem, in fact, many will have tremors or other symptoms like sleep disorders, constipation, light headedness when they stand up. so those can precede the tremors or the movements. >> problems. >> so you have it and don't know what causes it? doubtisease no
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for years before it's visible. >> do we know if it's genetic or hereditary? >> no. >> there are somewhere it's a genetic linkage. in most cases, it's not the case, we don't know if it's genetic or expose years, alzheimer's and parkinsons are neurodegenerative conditions. we are not sure of the cause yet. i am confident we will be. >> also. doesn't everybody get their own unique case of parkinsons? ron's symptoms are not necessarily going to be the same as someone else has? >> it's true. there are some classic symptoms that many people will have. some people mainly have tremors. the thing that's really unique is the difference in rate of progression. unfortunately, for ron, his sim tomcat have progressed in a a vy slow rate sense i've known you. >> he says that will be the one constant t. one thing that's
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constant is the rate at which the degeneration takes place. >> that tends to be the case. >> in terms of noticing it, the two things i noticed the most are getting out of a car and buttoning a shirt. >> so it's hard for your fingers to manipulate the buttons? >> i can't analyze it. i guess i tried a couple times. it doesn't work, i get frustrated. >> this is classic, fine dexterous movements, difficulty with those sorts of tasks. >> getting out of the car also. >> another classic complaint. >> and for those sort of things, anybody sw an illness knows you get irritated. you get irritated by it. how does that affect the rest of the -- >> i don't get irritated. . after 12.5 years, you accept it. that's what it is, you move onto the next thing. >> i know are you a fearless interviewer. you have interviewed the president. you have interjust netanyahu,
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everybody, is there the scariest? >> no, i think it did when i first got it was made aware of it. but not blowing smoke when this guy is around to guide you through it, you get the confidence, no, it doesn't scare me. >> the family always will. >> that's absolutely true. i think it's so important to have medical professionals you trust and are on your side and accessible. i can't tell you how many times ron will say i need to text bill marsh and ask him about such-and-such a thing. it's been so handy to, you know, have that kind of support and like i say it does affect the family as well. when you initially get that diagnosis, what does it mean?
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>> you as a reporter were probably glued to the internet? >> i did. dr. marsh and i were talking about ucsf has a parkinson center. it has a lot of good informaher suppothere is anothe for care givers of people with parkinsons called there are a lot there are a lot of good and interesting posts on there that can help you through. >> speaking of support groups, there is not something you are into? >> no. >> no group therapy for you? >> no. >> have you your family? >> yes. >> you have your radio family. that's a massive support in there it is. the response when i went public, it was phenomenal. it made me feel ten times better than before. do i wish i had said it comingen earlier? no. it was the right time. >> when you go out if public you
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don't want to be defined about it. do people tell you about their familys? >> when did i disclose it? >> a few weeks ago. >>t the of it the count is zero. i think they respected what i said. i don't want to talk about it. it's cessation. it's zero. it doesn't come up. >> so is the depression easy because of the medications and the knowledge you have there great family and doctor taking care of you. how much difference did that make for you? >> i think the anti-depressants made a huge difference. >> what was it like already now? >> a broadway tunnel. if you drive to work, some jerk cuts you off, you tend to get real angry. with anti-depressants. you don't get angry. >> all right. before we wrap up, dr. marsh,
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can you talk about all the suppor support? >> we are fortunate to have experts at ucsf and stanford uc day of the, parkinson's substitute, kiers have experts. >> you have 30 seconds. >> i know, don't be afraid. if things happen and when they, do accept them. move on. i'm not the kind of person that says, oh, i'll find some good in it. there is a lot of good in life. like the family, the job, the audience, so the bottom wleen on it is i'm very fortunate. i kind of laughed when michael j. fox had a group called lucky guy. frankly now i get it. i am. >> you are a lucky guy. we are lucky to have you here. >> thanks. >> i hope you keep working for aening lo, long time. >> thank you so much. i appreciate it. >> my pleasure.
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folks at home, thank you for being with us. we hope all the comments you heard today will help a lot of people live income parkinson's disease, you can find links on our website. thanks, so much for joining us. we'll see you next time.
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